News


Watching miracles in Hungary unfold for cerebral palsy kids


Budapest, Hungary
Budapest, Hungary
Photo by Google Images

Guinness PubFinder Ad

In the hotel where I lodged while in Hungary recently, there were quite a number of families also staying there who had children affected mostly from the devastating illness cerebral palsy.

The striking thing was that they were of all nationalities, and not just European. They were there from the US, South America, and Asia.

Hungary, despite all its problems associated with poverty as it struggles to adjust to a new situation within the EU, are to the fore in the field of therapy associated with children afflicted with the ailment.

The Peto Institute in Budapest, famed for its success in alleviating the symptoms and indeed greatly improving the lives of children with the condition, was near our hotel, and it was to there these families were either revisiting, or going there for first assessment.

An American father, there with his wheelchair-bound eight-year-old little boy, told me: "This is my third trip to Hungary with Alan, and the improvement in him has been miraculous in a little over two years.There is  a great understanding over here about his condition. For instance, they were able to tell me after our first visit, that his brain is not affected, which was a joy beyond compare to learn. Now we sit and look into his eyes in the knowledge he knows us and all that is going on with us as a family. We converse with him and even though he cannot speak, we know by his squeals of delight and frowns of disapproval, that he understands and is participating."

He continued, "Over half of the children with CP(cerebral palsy) are born with their brains undamaged, and it is kids like this which have the best chance at being helped, naturally, and we are very happy that Alan is in this category. Youngsters with spina bifida fare even better, as they generally have more control over their motor movements."

"We have found that while there are no claims to outright cures for our children here, the thing which is startling is the treatment they receive. It is called "conductive education" - which teaches the children
how to move in ways never before attempted by them. The brain is encouraged to try, by the methods applied. Naturally,this is often excruciating for them initially,as they are made to work at it for up to six hours a day, five days a week."

This dedicated dad went on "The wonderful people who strive for our children here are called 'Conductors.' They don't go in for fancy names - all they desire is to show a degree of success for their expertise. When this happens, they are as overjoyed as ourselves."

This father, without an ounce of self pity or bitterness, uses most of his
financial resources and borrowings, to come to Hungary for at least three four week periods every year.

"The people I work for in the States are flexible enough, and our lives have become a balancing act. My wife, who is also employed, comes at other times when I might be under pressure to remain at work. All of this is something we have to do and while there is great expense involved, there is no other way. It's worth it. Just to see your child able to hold his head in a more comfortable position, or to attempt to put one foot in front of another, is all we ask. These simple steps forward give him a quality of life. We see it in his eyes."


Nster.com


4 Comments

See all comments

This truly is wonderful, not only for those who have it but the parents. I never doubted they knew what was going on around them and just not able to communicate as most would understand it. What an uplifting story, badly needed in todays society.
It can be done. Our son, almost 30 was born with CP. He has substantial mobility issues, but has managed to get his BA, his library degree and and independent life as a librarian in Queens. If I sound pretty proud, that's not a coincidence.
This is wonderful news. My daughter is 46 years old and has Cerebral Palsy she is also severly retarded. How I wish there had been a place like this I could have taken her to when she was younger. When she was born she had seizures when she was 3 days old. They discovered that she had Toxoplasmosis which apparently I also had and the feus was damaged when I was pregnant. Doctors now tell pregnant women not to change cat litter trays because cats are known carriers of Toxoplasmosis. I didn't have a cat but I could have picked up the disease when gardening or in some other way. My daughter did not walk until she was 7 years old and she was toilet trained at age 9. These were big accomplishments for her at that time. I am so happy that there is help for young children now even if it means going to Hungry. I am sure that eventually some Americans Physical terapists will travel to Hungry to learn their technique. When my daughter was little doctors wanted me to place her in residential care. I kept insisting that she would walk and she did. I took care of her until she was 18 yrs old. She now lives in a care home close to where I live and I can still supervise her care and bring her home for visits. She goes to a work program every day though I notice she is beginning to show her age and slow down. Rober J Sullivan thank you for this story.
Beautiful story. My cousin has a son who is now 23 years old, born with cerebal palsy. From the moment that she found out she hit the road running getting every imaginable help for his condition. He has had several surgeries, botox injections and countless hours of physical therapy. She spent day and night working with him in an attempt to improve his condition. To add to his problems he has had to deal with bullies in school and in his neighborhood. He has made great progress both physically and mentally. The great joy to his family is that due to the loving efforts of everyone he has beaten the odds and has progressed in leaps and bounds in his education. In fact he is about to embark on a PHd in GENETICS.
 




Log into IrishCentral with your Facebook account


or sign-in directly

E-Mail:
Password:
 Remember me Forgot my password
Not a member? Register Now!
print this article Print
email this articleE-mail