Mary and Tony Heffernan of Co Kerry are making strides to give back to other families with sick children following the loss of their five-year-old daughter, Saoirse, last January from the very rare Battens Disease.

Five-year-old Saoirse Heffernan, who is battling a rare neurological condition called Battens Disease that will eventually take her life if she doesn't receive treatment, is back in Co. Kerry, Ireland this week after spending four weeks battling infections in a Dublin hospital.

Boxers from all over Ireland took to the ring at the weekend to fight for the lives of Saoirse, 5 and Liam, 2 Heffernan from Co. Kerry who are battling to stay alive after being diagnosed with a rare disease called Late Infantile Batten Disease.