Liam Heffernan cleared for life-saving New York medical trial

In New York a charity has also been set up on the back of a fundraiser held in the Kerry Hall in Yonkers, New York, last September where over $120,000 was raised for Saoirse and other Irish children with the disease.

To donate, checks can be mailed to the Saoirse Foundation, Kerrymen's Association, 307 McLean Avenue, Yonkers, New York 10705-4488.

The charity’s website www.beeforbattens.org also accepts donations and works to increase the awareness of this cruel disease.

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Nster.com