Irish twin Boston bound for life-saving treatment for extremely rare condition

@bodyshield-site is on the bottom of article.... Childrens Hospital in Boston is Great!! Good Luck, you are in my prayers...

Is there an internet site we can donate to for this child? Seems to be an important part left out.

The article assumes we all know what "full funding allocation" means. I do not. I will assume that Irish Health Service Executive (HSE) will not cover rare conditions that are not treated in Ireland by Irish doctors and hospitals. They will fly you over in a jet but not cover the complete cost of rare conditions to be treated in other countries. How is this a complete national health plan? I guess if you are old and in need in Ireland you better either be rich and if not cute or popular so you can get donations or you are not getting treated for rare conditions. You will get free flight in their government jet though. So does this mean the government just lets you die over there in public health Ireland?