Chasing Miracles, The Crowley Family Story - Part One: The Disease

“Now Megan’s grown and she’s stabilized and Patrick as well, but they’re still very special kids. Megan still has more strength than Patrick has, and she has a much more expressive personality too. They’re incredibly smart kids. Megan’s a straight-A student. Patrick’s in sixth grade, Meghan’s in seventh and John’s in eighth . . . in terms of the future, their [body] parts will continue to be healthy and this drug will keep their systems stable. We look to new technologies, to new enzymes, to new small molecule approaches, to combinations of therapies, that in the next many years will extend and enhance their lives,” said John.

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